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| Kauai sunset Jan 2020 |
I have been somewhat confused and tired of my current view of my health as it seems that my disease is being kept at bay by taking Chemo treatments that make me feel sick and loss of confidence in my body or mind. The treatment, at this point, is far worse than the effects of the disease. I stress “at this point” as my 13 months of treatment since my last “break” from Chemo has shown no discernable growth in my Cancer in my liver and my lungs. Also, of note, is the fact that there has been little discernable shrinkage over the same period. And that, in a nutshell, is the conundrum of dealing with this Cancer for me.
Knowing that the treatment is keeping the Cancer at the same size is comforting as its growth is problematic. But also, being aware of the three-week treatment cycle that takes away 7 to 10 days of a desired quality of life is not a balanced view of a lifestyle. Basically, it leaves me with half of my life feeling sick (nausea), tired, listless, experiencing bowel issues, lost confidence and a few miscellaneous side effects that seem to rotate through a cycle.
With all of that going on, I am still trying to maintain a lifestyle that is anticipated as being normal to me. That is a challenge as I am holding down a job I like and wish to do well. On some days it is hard to maintain a positive view of the world and get my job done well. Those days are mostly in the week following the commencement of Chemo treatment. However, there are odd days when some of the effects of Chemo show up forcing me to mask my real self to maintain my charade of an old guy in good form.
I use the term “charade” as at my work there are only a couple of people who know about my Cancer. They are close and will not share that information with others in casual conversation. At the job I am the old guy in good form, and I like that status. I do not wish to share my real situation with everyone, and I consider the airport a bubble where my Cancer does not control my life or is part of the discussion. As a result, there are days that I am sick, but I am forced to put that aside and maintain my charade. That is very difficult some days but necessary for me.
I have also been through a period of reflection about my mental and emotional state. There are days when my family must question my true feelings as I disappear into my own cocoon and fail to communicate effectively with them or others about my health. I believe that is a defense mechanism for me as I do not want to continuously discuss or expose my feelings or thoughts about where we are and where we are heading. I lay blame on the Chemo treatments for this behavior, but I know that I must talk about these things with my family when I feel confident enough in my true feelings to do so. This is a source of some stress for me as I do not want anyone in my family to feel uninformed or left out when I am not communicating well or am busy trying to figure out what I am feeling.
The question now is “so what is next?” as I start my new break from Chemo treatments. It is my hope and desire to feel stronger, healthier and maintain a positive view of life and the future. Sitting in Hawaii, as I am now, is a good place to figure these things out. This environment is like home to me as we have been coming to the same Marriott Vacation Resort over the last 22 years. It is a shelter from the everyday distractions and obligations and a place where one can think clearly. Additionally, today is day 20 since I have had a Chemo treatment and my body has settled down and the effects of my last Chemo are pretty much behind me. With that in mind I find myself feeling healthier and more positive about my future. I believe that I can still handle my obligations more readily and make time to relax and enjoy some of the things that make me happy. I still feel I am being somewhat recluse in my lifestyle and intend on getting out and seeing people in a social environment more often. That has not been the case over the last year and a bit and I miss that interaction.
Going forward I will be more positive, less protective and more outgoing and communicative as I continue through this “break” period. I believe it will be a better state and one where I can cope more effectively. Let me know if that is not the case. <grin>
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| Rodier Family Kauai Jan 2020 |


