Thursday, April 16, 2020

Reporting from within Part 2




Good day to you. Thank you for taking the time to drop into my Blog area for a few minutes. I appreciate that you are interested in what we are doing and that you find my ramblings entertaining enough to return. I find it more difficult to get to the tasks these days as, for some reason, I do not have the drive that I once had. I was eager to get the day’s list of things to do and spent pretty much all day doing small or large jobs to get them off the “ToDo” List. None-the-less today I decided I would sit down and update you on some things that I have been thinking about.


As with everyone else in the world, I have opinions and new findings due to the Covid-19 trials we find ourselves. Unlike some others, I will not use my blog to expound on this subject as there is far too much information and dis-information in social media these days to satisfy anyone’s desire for insights. I will restrict my input today to matters of health and happiness in the Rodier compound.


In my last update I mentioned that I had an appointment to see (or in this case talk to over the phone) my Dr. to get my results from my CT Scan of March 27. The appt was intended to be an update on my results of my scan and then to set the stage for the next period without Chemo. The call came at the scheduled time and we chatted about current affairs for a couple of minutes. His reality is quite different being a front-line worker with many of his patients being prime targets for the current virus that is plaguing those who are operating with compromised immune systems. But he seems to be adapting well to the changes and he seemed well based on our conversation. I have had a unique relationship with Dr Jonker over the years and I always ask him about how he is doing before he gets a chance to ask me that question. He did get his turn and he asked me how I was doing to which I responded that I was doing very well and appreciating the time away from Chemo. I explained how all systems seem to have regulated again and my lifestyle and wellness were on track. He was happy to hear that but had to get to the results of the test before he commented on my enthusiastic response.

He explained to me that my results were worrisome and then he went through the points one by one. 

My lungs were not of concern or were “unremarkable” in the language of the technician. The liver masses were the concern area of this CT Scan. There were substantial growth indicators in the tests and in some cases up to 60% growth from my last scan. He mumbled through the statistics which I listened to but did not retain as I knew where we were heading. He asked me what I thought when he was finished talking numbers and technical talk.  I paused for a minute and then said that I was unhappy to get a result like that. In addition, I told him that I knew that we were heading back to the Cancer Centre to re-start Chemo. But to satisfy my curiosity, I asked him what he thought would be the situation if we waited 3 months before we returned to Chemo. His estimation was that there was a 25% chance that I would be having some difficulties with liver and bile duct functions if I delayed Chemo for another 6 months. That told me that the issue was important but not critical at this time. We chatted some more, and his words once again indicated that decision either way was a decision about “lifestyle vs survival”. Hmmm we have been here before. When put in those terms I usually feel confident enough to pick lifestyle and move on as before. However, this time I decided to re-start Chemo treatments. We talked about schedules and I am now scheduled to return to QCH for treatment on April 21 and every three weeks thereafter. We finished our call and I started to think about where we were heading. I was unhappy as I have been enjoying the freedom to eat and drink what I want when I want. I have also been enjoying the good solid sleep I have been having over the last few weeks. Most of all I have been enjoying the freedom and ability to do whatever I felt like doing as I have few limitations due to my physical state. That freedom was an uplift for my mental state, and I have been quite happy with all things in general. I was not feeling the same way after my call with Dr Jonker. Within 24 hours of the call my body demonstrated its response to the situation as my bowel took on a life of its own like the reaction I have with Chemo. I found that weird and annoying, and within 24 hours the reaction went away. I found this physical reaction to be a simple psychosomatic reaction and happily it was over before it became too serious. Today I am resigned to the Chemo schedule and will see where it takes me. I am hoping that I will be able to minimize the side-effects of the Chemo and hope that the internal effects of the Chemo show some improvement in late June when I have my next CT Scan.


In the real world, we are experiencing a slow spring transition. The lake is trying to “ice out” but the cooler temperatures at night seem to be winning as the ice is thinning but certainly not giving way to open water. I am Ok with that as I need to float my assembled floating docks in front of my shore dock frame which is made of aluminum and is currently touching the water due to the increase in water height this spring. The force of the ice from the windward area will likely cause some damage and I do not need that type of stress right now. With the floaters protecting the aluminum I may be able to protect its integrity. However, each day we are faced with high westerly winds. These winds compound the difficulty of doing what I need to do with the floaters, and I am hoping that I will be able to find a window to get this done before the ice disappears.  There is lots of movement of the ice mass on the last days of being in the lake. It is that brief period that causes damage as the ice mass is very heavy and “convincing” when it decides to move things. Aluminum does not do well against the ice.


We have been doing well in isolation as we have supplies, food ideas, BBQ gas, and lots of things to do to keep us busy.  However, I find that we spend quite some time reading, watching movies, and sleeping. This is very much like a vacation but at home.


I do hope you and yours are well and happy and that we will soon find some relief of the current situation.

Be well ….. and thank you for dropping in.


Saturday, April 4, 2020

Good day from the Bunker …. April 4, 2020




This blog has been dormant since Jan 27, 2020 when I last updated you on my time without treatment and what I had been thinking at that time.  From then to now we have all seen a significant change in our lives as we are amid The Pandemic of 2020 – Covid-19.  I do not intend to use this blog to hypothesize on the processes, the outcomes or the impacts of this on our lives.  You are all aware of what it is doing to our lives and there are scores of reliable sources of prognostications.  As a result I will just report on life as we know it from here.  Having said that, some of the things I will report here will be influenced or caused by the pandemic so there is no getting away from it.  I will resist the temptation to editorialize as I go forward here.


To be blunt, I am well and happy that I have now been three months off Chemo.  The only real change is that I feel better and am less concerned about my body and my mind.  I am staying physically active and my job continues to be a priority in my life.  My bodily functions seem to be working as they should and I have fewer “isolated situations” which cause bodily functions to operate abnormally under normal conditions.  In short form – my bowel is operating as it should.  I am pleased with how well I feel and I am becoming a master of good nights sleep.  I find myself going to bed at 9:30 because I am tired and getting up the next morning at 8:30 am.  During that time I might have a few short periods of awareness but mostly the time is spent in sleep states.  This is very unusual for me and I am just enjoying it.


On April 8th I will be having a discussion with my Dr to get the results of my March 27th CT Scan.  In the interim I will get some blood tests so the Dr can see how my results compare to the time when I was on Chemo.


Our vacation in Hawaii ended on Feb 1 and Freddi and I returned to Ottawa as planned.  We picked up our normal routines where Freddi left for work at 5:30 am and my shifts were a couple a week at some ungodly hour in the morning at the airport.  I usually worked Thursday and Saturday and I picked up some other shifts from time to time to help others who had other things to do.  All was going well and the routine was working well.  In February, Freddi was notified that she was going to retire from Sporting Life.  Through discussions Freddi agreed that would happen on March 6th.  That gave her time to do the proper amount of training of others and leaving her position clear of backlog issues.  So that happened as planned and Freddi started a significant change from her 23-year employment period in the sporting goods retail industry to staying at home with me.  Yikes what a change for sure!  What was she to do with her time?  To distract her I had arranged a “Day at the Spa” at the Nordique Spa.  So we spent most on her first Monday relaxing, sweating, dipping and eating while relaxing at the Spa.  This was a first for me and I found it to be a little cult-like with everybody walking around in house coats and whispering to each other.  However, I relaxed and enjoyed the time there with Freddi. She slept well that night, as did I. 


It did not last long until she had a whole new agenda to work with.  On March 10th in the mid-morning timeframe, Tara-Lee let us know that she was in labour and was on her way to hospital to have her second child.  We had been invited to participate in the birth as we had when Kaia was born.  We arrived at the hospital about 1:30 pm and she was in full labour.  It has started around 12:30. She was a trooper and gave a clinic on childbirth to all who were around.  By 3:09 she had a beautiful little boy and he was on her chest for the first time shortly thereafter.  All were well and happy and Brehn stayed with her most of the first night while she was in hospital.  He had done something to his back and was in full agony, but he pulled his weight through the birth and the support period after the birth.  Somewhere during the late afternoon, baby boy became Logan Makai as he settled in with his new Mum and Dad. Freddi and I returned to the house in the late afternoon to take care of Kaia overnight but Kaia wanted to stay with Anna for a sleep-over that night.  Kaia had been with friends while TL was in labour so Freddi and I spent the evening at TL’s place by ourselves.   We had transported the animals to the house as we knew we would be staying for a while to help where we could.  It was a busy second day of retirement for Freddi.  


On Wednesday Freddi and I went to pick up Kaia and take her to the hospital to meet her little Brother.  It was fun to watch interact with Logan and Mum and Dad.  They returned to their home late that afternoon and we helped with dinner and such duties to try to make the house somewhat normal in operation.  We managed to do that for 7 days and enjoying all of the time we spent there.


Then came Covid-19!  This interjected several issues in our lives as it did for all Canadians.  I stopped going to work on March 19th as my compromised immune system was an issue with work at the airport.  This was welcomed by the airline as they were trying to find ways to deal with the impact of the pandemic on airline operations. Eventually they decided to reduce operations which resulted in a reduction of aircraft, schedules and people.  They offered several options to employees for voluntary departures from the company and 90 % of the required reduction of employee level was fulfilled by those voluntary departures.  As a result, on April 1 I was laid-off for 3 months or until operations picked up again.  The LOA may extend to 6 months.  I was quite happy as I still have an employee number with hope to return to my job once life starts to re-establish a new norm.


Freddi and I are currently home at Lake Bernard doing our duty as a self-isolation family.  Her retirement and WestJet’s determinations have thrown us together in our small house for the foreseeable future.  I wonder what that will look like after a few weeks.  We are two weeks in and we are both still breathing.  That is encouraging.


On a more serious note, I am hoping that you and yours are all safe and practicing good isolation habits and learning new things about yourselves, your families and new skills in technology (like zoom) to keep abreast of all your favourite families through technology.  Please feel free to communicate with me directly if you feel you have questions that I can answer.

Be well and safe ......