Tuesday, September 12, 2017

Break Time!


It has been too long since I have addressed this blog and given an update for those of you who take the time to read these notes.  Why do I know that?  Well information has been getting back to me about what has been happening to me and I have not yet shared that information with you who take the time to read these ramblings.  So today I have finally found some quiet time to actually sit down and write about my last week. 

You might recall that I had a CT Scan on Aug 28th.  That scan was to have a look at what progress or regression had happened to my cancer since my last one in early June.  The appointment went off easily and I got a bonus as I was well prepared to spend 2 hours drinking their horrid drink that lights you up for the scanner.  It turned out that the instructions did not include the horrible drink and I went right into the scan shortly after I arrived.  I am familiar with the process and the man who runs the scanner at the Civic Hospital.  He is not too friendly as he only spends 5 minutes with his clients.  However, we chatted this time and I consider that a breakthrough.  After the scan I took advantage of my free two hours and squandered away the time doing menial chores at various retail outlets in the city.  All I could do was to wait for the results which I would get on Sept 5th just prior to my next treatment on the 6th.  I do not recall clearly what happened over the next week other than we had some company and it was a busy time at the cottage.  In addition I do recall rather crappy weather for the better part of that time.

On Tuesday morning (Sept 5th) I went to TOH for my normal blood tests and happened upon Dr Auer in the hallway.  Unfortunately, she was in a hurry as she had been delayed at home with kids being sent off for the first day of school.  As a result she was running late for her OR appointment.  We waved and passed on best wishes.  I then went to do some chores in the city before my appointment with Dr Jonker at 2 PM.  Freddi joined me at the appointment in Mod C of TOH.  I had been considering many scenarios going forward and my mind had settled on one ask of the Dr.  My treatment had been underway for 14 3 week cycles in this session and I was not particularly enjoying the side effects and the seemingly cumulative effect of the Chemo.  My nausea was lasting longer, the feeling of being tired and sick was lasting longer, my sleeplessness was lasting longer, my bowels were on their own schedule with a variety of “special” effects to keep me on my toes and overall my mental state was that of not being happy or content with the situation.  So my mind played with many scenarios to make thing different.  It swung the pendulum full cycle looking for different types of relief.  With all that in mind I was prepared to beg the Dr to give me a little reprieve for a period of time.

So finally, we were called in to get weighed and to chat with the nurse as she did a preliminary review of the last treatment.  We walked through all of her questions and provided some feedback to her to pass on to the Dr before he came to see me.  It is a pretty good process as the Dr comes in prepared to answer your questions and has time to think about what should be next given everything.  Away she went armed with lots of notes and a big smile.  She is almost new to working with Dr Jonker and she was very pleasant and caring. 

Dr Jonker arrived and settled in to chat about the CT Scan.  He started with the fact that the scan came back with no visible growth since the last time.  That is good news and we were happy to hear that.  He then said, “I hear you are looking for a break from Chemo.”  I responded in the affirmative and he said, “Fine but we will have go a whole session without treatment as if there is a mix of treatment and no treatment the changes in the results of the scans will not be easily interpreted.”  So what that meant was that he was OK with “The Break” and it would start that day.  That meant that my Wednesday treatment on Sept 6th would be cancelled and I would go until the end of November without a treatment.  Needless to say I was a bit surprised that I did not have to convince him of the need for a break and he was very supportive of my Chemo weary state of mind.  We established that I would have a CT Scan on November 7th and then see him again on November 14th to get the results.  He expects that there might be some marginal growth and that he will recommend further Chemo treatment starting at the end of November.  As I always do when we close in on winter, I advised him of our travel plans and he noted that information on my file.  Dr Jonker has been very good about making sure that my time away is as enjoyable as it can be and as Chemo free as possible.  With all of that settled he stood, wished us well and went on his way as his clinic was running 45 minutes late.

We were left to digest the rather short conversation and eventually we left the clinic feeling pretty good about the fact that I had several weeks (12) ahead of me before I had to face the Chemo drugs and side effects again.   That is pretty invigorating feeling.  I spent the rest of the afternoon digesting this situation and feeling the effects of the fog lifting off me in such a short period of time.

Later that afternoon, I received a call from Dr Auer’s assistant stating that thee Dr wanted to talk to me.  In short she was unhappy that we could not talk in the morning as she wanted to know how I was doing. However, it was fortuitous that I had more information about the going forward position due to my appointment with Dr Jonker in between our discussions.  We chatted about family, summer vacations, cottage life and of course where I stood in my treatments and my attitude about being a cancer patient.  It was so nice to chat with her and for her to give up some of her busy day just to check in.  She made my day with that call and reminded me why I liked her as my Oncologist of record.

That was one week ago.  In the last week I have been so busy doing things that I normally do not do that I have been unable to get to the blog to share this information with you.  Now that it is written I feel better as I have been harbouring my enthusiasm and dealing with some busy work at both the boat business and the consulting business.  The weekend was spent with Tara-Lee and her family and friends as they celebrated Kaia’s 1st birthday (actually Sept 19th) on a beautiful sunny Sunday afternoon.  Freddi and I were also invited to babysit on Saturday night as Tara-Lee and Brehn went to a concert with friends.  All in all a busy week has passed and I had plans to golf in Florida starting tomorrow but a hurricane called Irma changed those plans.  We are not going to Florida this fall.  It has been terrible watching the effects of the hurricane on the many small islands in the Caribbean and the destruction and chaos in Florida as the hurricane moved north at a good clip.  I feel very badly for the millions of folks who have suffered over the last 10 days or so.

So, on this very sunny and warm afternoon, I feel that I deserve a short cruise on Lake Bernard to contemplate what the 3 month Break will mean to me.  I am happy, feeling well and getting stronger and I can only hope that you also are feeling as positive about things as I am.

Thank you once again for dropping in and feel free to send me a note if you have any questions, concerns or just want to say hello.

My best wishes to all and my love goes out to all of you.